See The Beauty In Each Day

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As one who deals with primary Fibromyalgia, CFS, Sjgroens Syndrome and a slew of other co-morbidities that come along with being ill it’s often very easy to fall into a pity party for one.  Been there done it and probably will do it again at some point.  I like to think about what I can find positive or humor through this mess in the land of my Chronic Kingdom.  This can make it hard to see the beauty in each day.  It’s there we just have to look past the pain and fatigue.

My past three days I’ve been in the realm of fatiguehood (like my new word?)  You know those days right?  Where lifting your head up seems like a major effort or trying to make your limbs work but they are lead weights?  You just kind of sit or lie there staring off into space because even thinking takes to much energy.  Sound familiar?

My husband and I had to leave the house yesterday while I was feeling so bleh, heck climbing into my car took all I had.  If it wasn’t a doctor appointment I had to go to I never would have left the house.  As we were driving I was looking around in a daze and saw something that opened my eyes and lifted my spirits.  It was a guy on the corner with his dog waiting for the light to change and he was loving on him and the dog was just so happy, tail wagging and looking up at his human with so much love you could fee itl.  That brought the first genuine smile to my face that day.

I guess what I am trying to say no matter how bad your day is find a way to see the beauty in each day even if just one thing!

  • I woke up alive
  • My husband woke up alive
  • My morning coffee in my chair and all my loving little animal creatures all come say good morning to me every morning

As your day progresses and if you are bed bound find a show or a movie you know will life your spirits, I love comedy’s because laughing always makes me feel a bit better.  Maybe this sounds lame but if anything has taught me to slow down and enjoy what is really around me then my illness in some ways has been a good reminder in my life of what not to take for granted.

Tell me what is one thing today you saw that was beautiful or something that made you smile.  I’d love to hear from you.  Reach deep down past the black murkiness that dwells inside and tell me something you are grateful for, or makes you happy.

Much Love and Light,

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Clinical Definition of Chronic Fatigue Syndrome

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Chronic fatigue syndrome is a complicated disorder characterized by extreme fatigue that can’t be explained by any underlying medical condition. The fatigue may worsen with physical or mental activity, but doesn’t improve with rest.

The cause of chronic fatigue syndrome is unknown, although there are many theories — ranging from viral infections to psychological stress. Some experts believe chronic fatigue syndrome might be triggered by a combination of factors.

There’s no single test to confirm a diagnosis of chronic fatigue syndrome. You may have to undergo a variety of medical tests to rule out other health problems that have similar symptoms. Treatment for chronic fatigue syndrome focuses on symptom relief.

Chronic fatigue syndrome has eight official symptoms, plus the central symptom that gives the condition its name:

  • Fatigue
  • Loss of memory or concentration
  • Sore throat
  • Enlarged lymph nodes in your neck or armpits
  • Unexplained muscle pain
  • Pain that moves from one joint to another without swelling or redness
  • Headache of a new type, pattern or severity
  • Unrefreshing sleep
  • Extreme exhaustion lasting more than 24 hours after physical or mental exercise

When to see a doctor

Fatigue can be a symptom of many illnesses, such as infections or psychological disorders. In general, see your doctor if you have persistent or excessive fatigue.

Scientists don’t know exactly what causes chronic fatigue syndrome. It may be a combination of factors that affect people who were born with a predisposition for the disorder. Some of the factors that have been studied include:

  • Viral infections. Because some people develop chronic fatigue syndrome after having a viral infection, researchers have wondered if some viruses might trigger the disorder. Suspicious viruses have included Epstein-Barr, human herpesvirus 6 and mouse leukemia viruses. No conclusive link has yet been found.
  • Immune system problems. The immune systems of people who have chronic fatigue syndrome appear to be impaired slightly, but it’s unclear if this impairment is enough to actually cause the disorder.
  • Hormonal imbalances. People who have chronic fatigue syndrome also sometimes experience abnormal blood levels of hormones produced in the hypothalamus, pituitary gland or adrenal glands. But the significance of these abnormalities is still unknown.

Risk factors

By Mayo Clinic Staff

Factors that may increase your risk of chronic fatigue syndrome include:

  • Age. Chronic fatigue syndrome can occur at any age, but it most commonly affects people in their 40s and 50s.
  • Your sex. Women are diagnosed with chronic fatigue syndrome much more often than men, but it may be that women are simply more likely to report their symptoms to a doctor.
  • Lifestyle. People who are overweight and inactive are more likely to develop chronic fatigue syndrome. Stress also appears to be a factor.

Complications

By Mayo Clinic Staff

Possible complications of chronic fatigue syndrome include:

  • Depression
  • Social isolation
  • Lifestyle restrictions
  • Increased work absences

Tests and diagnosis

By Mayo Clinic Staff

There’s no single test to confirm a diagnosis of chronic fatigue syndrome. Because the symptoms of chronic fatigue syndrome can mimic so many other health problems, you may need patience while waiting for a diagnosis. Your doctor must rule out a number of other illnesses before diagnosing chronic fatigue syndrome. These may include:

  • Sleep disorders. Chronic fatigue can be caused by sleep disorders. A sleep study can determine if your rest is being disturbed by disorders such as obstructive sleep apnea, restless leg syndrome or insomnia.
  • Medical problems. Fatigue is a common symptom in several medical conditions, such as anemia, diabetes and underactive thyroid (hypothyroidism). Lab tests can check your blood for evidence of some of the top suspects.
  • Mental health issues. Fatigue is also a symptom of a variety of mental health problems, such as depression, anxiety, bipolar disorder and schizophrenia. A counselor can help determine if one of these problems is causing your fatigue.

Diagnostic criteria

To meet the diagnostic criteria of chronic fatigue syndrome, you must have unexplained, persistent fatigue for six months or more, along with at least four of the following signs and symptoms:

  • Loss of memory or concentration
  • Sore throat
  • Enlarged lymph nodes in your neck or armpits
  • Unexplained muscle pain
  • Pain that moves from one joint to another without swelling or redness
  • Headache of a new type, pattern or severity
  • Unrefreshing sleep
  • Extre

Treatments and drugs

By Mayo Clinic Staff

Treatment for chronic fatigue syndrome focuses on symptom relief.

Medications

  • Antidepressants. Many people who have chronic fatigue syndrome are also depressed. Treating your depression can make it easier for you to cope with the problems associated with chronic fatigue syndrome. And low doses of some antidepressants also can help improve sleep and relieve pain.
  • Sleeping pills. If home measures, such as avoiding caffeine, don’t help you get better rest at night, your doctor might suggest trying prescription sleep aids.

Therapy

The most effective treatment for chronic fatigue syndrome appears to be a two-pronged approach that combines psychological counseling with a gentle exercise program.

  • Graded exercise. A physical therapist can help determine what types of exercise are best for you. Inactive people often begin with range-of-motion and stretching exercises for just a few minutes a day. If you’re exhausted the next day, you’re doing too much. Your strength and endurance will improve as you gradually increase the intensity of your exercise over time.
  • Psychological counseling. Talking with a counselor can help you figure out options to work around some of the limitations that chronic fatigue syndrome imposes on you. Feeling more in control of your life can improve your outlook dramatically.

Treatments and drugs

By Mayo Clinic Staff

Treatment for chronic fatigue syndrome focuses on symptom relief.

Medications

  • Antidepressants. Many people who have chronic fatigue syndrome are also depressed. Treating your depression can make it easier for you to cope with the problems associated with chronic fatigue syndrome. And low doses of some antidepressants also can help improve sleep and relieve pain.
  • Sleeping pills. If home measures, such as avoiding caffeine, don’t help you get better rest at night, your doctor might suggest trying prescription sleep aids.

Therapy

The most effective treatment for chronic fatigue syndrome appears to be a two-pronged approach that combines psychological counseling with a gentle exercise program.

  • Graded exercise. A physical therapist can help determine what types of exercise are best for you. Inactive people often begin with range-of-motion and stretching exercises for just a few minutes a day. If you’re exhausted the next day, you’re doing too much. Your strength and endurance will improve as you gradually increase the intensity of your exercise over time.
  • Psychological counseling. Talking with a counselor can help you figure out options to work around some of the limitations that chronic fatigue syndrome imposes on you. Feeling more in control of your life can improve your outlook dramatically.

Lifestyle and home remedies

By Mayo Clinic Staff

These self-care steps may be helpful:

  • Reduce stress. Develop a plan to avoid or limit overexertion and emotional stress. Allow yourself time each day to relax. That may mean learning how to say no without guilt.
  • Improve sleep habits. Go to bed and get up at the same time each day. Limit daytime napping and avoid caffeine, alcohol and nicotine.
  • Pace yourself. Keep your activity on an even level. If yo

Alternative medicine

By Mayo Clinic Staff

Many alternative therapies have been promoted for chronic fatigue syndrome. It’s difficult to determine whether these therapies actually work, partly because the symptoms of chronic fatigue syndrome often are linked to mood and can vary from day to day.

Pain associated with chronic fatigue syndrome may be helped by:

  • Acupuncture
  • Massage
  • Yoga or tai chi

Disclaimer:  Chronic Gal (Jamie Volner) does not provide medical advice.  Please advise your Primary Physician if you think you are  experiencing any symptoms listed.

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Jamie Volner – Tucson Arizona

CFS Pain & Fatigue

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Ahhhh good old Chronic Fatigue Syndrome aka CFS.  These past few days CFS just hit me out of the blue as per usual.  I have learned to detect the “warning signs” for me.  I start feeling “flu like” with a slight headache that nothing relieves, my glands in my throat and tonsils feel “feverish” and a bit sore and keeping my eyes open is next to impossible.  It’s taken me quite a while just to type this little bit so far…I keep dozing off.

I remember what “normal” tiredness felt like and I can tell you…..CFS is not it.  Not even anywhere  near the category of normal tiredness.  CFS is a nasty cycle and until it runs it course from days to weeks on end the best you can do is ride the storm of exhaustion.  Your concentration levels run from super slow to ADD like.  Mine at the moment is forgetfulness and some aphasia .  I can think what I need to say but when I open my mouth to talk, not so much.  I come off sounding like a babbling goof ball.

Make sure you listen to your body.  Your body will tell you to go lie down and rest but your brain will tell you to “stop being lazy”and go get this and that done.  We’ll safe that for another blog post.  You CANNOT feel guilty for  your lack of energy…chronic illness has  a “mind” of its on and your mind will put a lot of pressure on you to do things to the point of “over doing thingt” and you will pay for it even longer.

Pace yourself and be patient with yourself.

Chronic fatigue syndrome has eight official symptoms, plus the central symptom that gives the condition its name:

  • Fatigue
  • Loss of memory or concentration
  • Sore throat
  • Enlarged lymph nodes in your neck or armpits
  • Unexplained muscle pain
  • Pain that moves from one joint to another without swelling or redness
  • Headache of a new type, pattern or severity
  • Unrefreshing sleep
  • Extreme exhaustion lasting more than 24 hours after physical or mental exercise

If you are experiencing any of these symptoms often I would recommend bringing your doctor into the picture just to be on the safe side.  I myself and writing to you in bed with my laptop and my eyes closing every few seconds.

Be well and tell me, how do you deal with CFS?

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