The Hamster Has Left The Building

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So, I’ve been “up” from bed for I don’t maybe 5 hours and my brain has yet to start functioning beyond ….. beyond….see, I can’t even come up with the right words to explain.  Making this Meme is the extent of any brain power I had for the day what so ever.  Share away with others you feel will get a giggle out of it.  I figure if I don’t poke some fun at what ails me I’d lose whatever is left of my mind.  So, my Hamster took her wheel and went on vacation…not sure if it’s an over night trip or weeks, we’ll see 🙂

Peace and Love

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Find Joy In Every New Day

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Hey there friends and readers.  I do hope this post finds you pain free or at least tolerable.  If you’re not up to par I wish you quick relief.

I tell you (well I probably don’t need to tell you) that being positive is something that has to be worked on in the challenging times of illness.  I know sometimes I am no Miss Sally Sunshine either and have my “moments” but I do recognize that if I just find ONE thing that makes me smile it changes my attitude.  I just need to find that little something and today it was my baby boy ferrets Simon and Smokie.  Here they are.

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Normally my husband gets up in the morning and feeds all the critters:  we have 4 cats, 1 dog, 2 ferrets and fish.  This morning Rick had an early doctor’s appointment and he was able to get the cats and dog taken care of but not Simon and Smokie so I went in and boy were they happy to see me.  So I slowwwwwwly lowered myself to the floor (ya you know how hard that is for us to do let alone get up) and they had me laughing my fool head off even while I was battling some heavy vertigo.  Their jumping, running and “attacking” me just put me in the right frame of mind regardless of how I feel.

We just have to hold on.  The heavens know I have my days and pity party for one just as often as the rest of you but if we just need to find some Joy in everyday.  No matter how small it is.  Sometimes when I go to the grocery store (and I hate going there) I treat myself to a Starbucks and head for the floral department and stand there and smell the flowers.  The lady at Safeway who works in the floral department is used to my walk by sniffing sessions lol….

How is your day going?  Good, Bad or Indifferent….you can chat with me about it, I get it and I can be a great sounding board.

Here’s To A Pain Free Day!

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Jamie Volner Tucson Arizona

Freedom Of Speech Doesn’t Make You Less of An Ass

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I have taught my son growing up (and he hates this expression) “everything you do or say affects others around you.”   I understand “Freedom of Speech” but that doesn’t make you less of an ass for abusing that right.  What I mean about that is :just because you can, doesn’t mean you should” (a quote from the book Acheron by Sherrilyn Kenyon)

Everyone does have the right to their own opinion, their own ideas etc. but they don’t have the right to be a jerk about it.  Use your head, use your common sense, people have feelings.  I’m sure your feelings have been hurt at some point in your life.  Think before you speak.  If I said everything that came into my head I’d probably be burned at the stake.  Do they still do that?  Anyway you get it.

You know you see people riding in disabled carts at the store.  First thing I notice is a person will “inspect” them and make a decision upon what they “see” that person “can’t be disabled” they look just fine, or, “well if they’d lose some weight maybe they could walk”…ok that one pisses me off more than you can imagine.  That is a whole different topic.

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This is me, Chronic Gal….now making a snap judgement I look fine and healthy don’t I?  But if you see me with a cane or using a wheelchair because I LOOK good that means you can say to me out loud “Well maybe if you exercise more, or go back to work or……….”  Really?!  Your Freedom of Speech just set me back mentally about a week of feeling hurt and start questioning myself.  Freedom of Speech does NOT give you the right to be an ass!

I just ask, think,……..before……….you speak…..will what you say possibly hurt someone?  Being truthful, honest or exercise your right to open your mouth…comes with some sense of responsibility and common sense on your part.  I hear all the time “I don’t care, I can say what the fuck I want” or when asked why they can say that “because I can its my right, my freedom of speech”  :::::rolls my eyes::::: whatever….people need to learn some tact.  I guess I am “old school” when it comes to manners.

Tact you can click the link and learn about what it means (if you don’t already) hey, not being a smartass I’ve learned that many of our younger youth have no clue.

Alright, I’m done preaching.  I am all about Freedom of Speech I would just like people to take a step back and consider if what they feel they need to say will make a difference in the world or may someone’s world hurtful.

Peace Love & Light

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CFS Pain & Fatigue

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Ahhhh good old Chronic Fatigue Syndrome aka CFS.  These past few days CFS just hit me out of the blue as per usual.  I have learned to detect the “warning signs” for me.  I start feeling “flu like” with a slight headache that nothing relieves, my glands in my throat and tonsils feel “feverish” and a bit sore and keeping my eyes open is next to impossible.  It’s taken me quite a while just to type this little bit so far…I keep dozing off.

I remember what “normal” tiredness felt like and I can tell you…..CFS is not it.  Not even anywhere  near the category of normal tiredness.  CFS is a nasty cycle and until it runs it course from days to weeks on end the best you can do is ride the storm of exhaustion.  Your concentration levels run from super slow to ADD like.  Mine at the moment is forgetfulness and some aphasia .  I can think what I need to say but when I open my mouth to talk, not so much.  I come off sounding like a babbling goof ball.

Make sure you listen to your body.  Your body will tell you to go lie down and rest but your brain will tell you to “stop being lazy”and go get this and that done.  We’ll safe that for another blog post.  You CANNOT feel guilty for  your lack of energy…chronic illness has  a “mind” of its on and your mind will put a lot of pressure on you to do things to the point of “over doing thingt” and you will pay for it even longer.

Pace yourself and be patient with yourself.

Chronic fatigue syndrome has eight official symptoms, plus the central symptom that gives the condition its name:

  • Fatigue
  • Loss of memory or concentration
  • Sore throat
  • Enlarged lymph nodes in your neck or armpits
  • Unexplained muscle pain
  • Pain that moves from one joint to another without swelling or redness
  • Headache of a new type, pattern or severity
  • Unrefreshing sleep
  • Extreme exhaustion lasting more than 24 hours after physical or mental exercise

If you are experiencing any of these symptoms often I would recommend bringing your doctor into the picture just to be on the safe side.  I myself and writing to you in bed with my laptop and my eyes closing every few seconds.

Be well and tell me, how do you deal with CFS?

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